Beneficiary Profile 1470 Nur Aileen

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Campaign Creator
Name: JENNY CHU
Nick Name: daai

Description

NUR AILEEN, who is only two years old, unfortunately, suffered from spinal muscular dystrophy and caused breathing difficulties. She must receive treatment as soon as possible to save her life. However, her family is poor until cannot afford the medical expenses of RM43,400.00. We earnestly request the help of enthusiastic public by donating for her to save the precious life of the little girl.

When NUR AILEEN ALFANISA QALESYA BINTI MOHAMAD ALIFF was 5 months old, her mother noticed that she was different from normal children. When she was 8 months old, her mother took her to the hospital for blood tests and other check-ups. A medical report determined she suffered from spinal muscular dystrophy a month later.

One in four patients with this disease tragically succumbs to respiratory tract infections, usually before the age of two. Patients begin with weakness in the lower extremities, inability to stand and walk, decreased tendon reflexes, and occasional tremors of the tongue and hands. As the muscles continue to atrophy, the ability to walk will eventually be lost.

NUR AILEEN is still in danger because persistent muscle weakness can cause scoliosis, affect lung function and cause breathing difficulties, requiring supportive breathing treatment to maintain her life.

In March last year, she was sent to the ICU due to breathing difficulties, and in April she have to put on a nasal cannula for 24 hours to stay alive. If she didn’t put it on, she would have difficulty breathing and hypoxemia, causing her heart rate to increase, instantly life-threatening.

The mother NUR HIDAYAH told us that her daughter also needs a cough acid machine because she cannot expectorate sputum naturally. This problem causing her lungs to become infected and very weak. In addition to needing a cough acid machine, the little girl also needs the LEGA KID to relieve breathing difficulties. Because of muscle atrophy, she also needs to wear special protective shoes to protect her feet.

Their family of three lives in Malacca. In order to get medical treatment, the mother had to travel long distances to bring her daughter to the government hospital in Kuala Lumpur for the follow-up consultation.

The little girl’s father works as a maintenance worker in a car factory, and the family of three lives on the meager income of the breadwinner of the family. As the child needs special care, the mother cannot go out to work. The life is already difficult, and they are really unable to cope with the enormous medical expenses of their daughter. In desperation and helplessness, they entrusted us to launch crowdfunding amounted RM43,400.00. The donation will be used to cover the costs of the daughter for two years.

These expenses include medical expenses, the follow-up consultation fees, the monthly rent of MACHINE BIPAP and COUGH ACID MACHINE, purchase of LEGA KID, suction catheters, gastric tubes, sterile water, diapers, and milk powder.

The monthly breakdown is as follows:
Milk Powder NUTREN JUNIOR: RM 76.00 X 8 cans = RM 608.00
SUCTION CATHETER: RM 90.00 (RM 1/piece)
Sterile water: RM 6.00 X 20 bottles = RM120.00
Gastric Tube: RM3.00 X 4 Pieces = RM12.00
Diapers RM 30.00 X 4 packs = RM120.00
Follow-up consultation fee RM 200.00
Rental fee for MACHINE BIPAP: RM 400.00
Rental fee for COUGH ACID MACHINE: RM100.00
total Monthly Fee: RM 1,650.00
Fee for two years: RM 1,650.00 X 24 months = RM 39,600.00
LEGA KID : RM 3,800.00

Total: RM 43,400.00

We earnestly request the generous donations from enthusiastic public to help the little girl NUR AILEEN to get over the difficulties. Kindly share this message so that more people can save the little girl. Thank you.

【Update 25 Aug 2022】

We would like to thank the people across the country for donating RM 8,700 for medical treatment and medical expenses to AILEEN, who is only two years old this year, for the treatment of spinal muscular atrophy and dyspnea. Stop donating, thank you all. Prior to this, we had purchased the chest physical percussion device LEGA KID for the little sister to relieve dyspnea.

Mother NUR HIDAYAH thanks everyone for their donations so that her daughter can receive treatment to save her life. She is deeply grateful for everyone’s love. We wish little sister AILEEN a speedy recovery and a happy growth.